An Undiagnosed Life

I got you all caught up on Henry's medical journey over the last few years since my last post and there is more this past year! Shocker, right??  Overall, Henry's been amazing the last couple of years. He's more content, he's interacting, he's laughing, smiling, reaching, exploring and just happier! He LOVES to just chill in his bed and listen to music, movies, or talk with his angels, who I'm pretty sure tell him jokes to make him laugh all the time!  I mentioned before that we had a doctor that was going to do Henry's foot surgery, but a less invasive procedure and then it got cancelled two days before. I've said it was a God thing and while I was extremely nervous about him having such a major surgery, I knew he needed it to have a chance at standing or using adaptive equipment to move around.  For reference, this is how his feet used to look. Completely turned in with some stretch, but very difficult to get into a 'regular' position to even g...

 Henry started Kindergarten! Can you believe it? I sure can't. Every parent knows it's coming, but with Henry I just never fully planned for it. I didn't know what that would look like. And I didn't know the best place for him. Thankfully, we're zoned for an amazing elementary school that has an incredible CDC (Comprehensive Development Classroom) program.  He's been home for the past 3 years. I've been able to see him all day everyday and play with him and snuggle him. So I was surprised when I didn't have as hard of a time for his first day! LOL It's always chaotic anyway for first day of school days, but we got to meet with the teachers and school nurse a few times throughout the summer and that made all the difference. They are absolutely AMAZING! I could not ask for better teachers. Seriously. They adore him and take such good care of him! The school in incredibly inclusive and has him participating in all the things.  He even started riding the...