Faith and Unknowns

It’s been a minute since I’ve posted or given any real update. Y'all, some days it is pure survival mode. And we are trying to find in-home care for Henry, on top of therapies, appts, jobs, other kids. Life! Lol I’m spent. 

Getting through the unknowns of Henry is such a struggle. It's taken a long time to know what makes him smile and even still, it doesn't always work. It's taken me months to begin to understand his cries and what they mean. It is his only way of communication still. There are no words, no pointing, no grabbing, no showing, no nothing. It's literally like having a newborn still. I say it often because it is the easiest way to describe Henry. 

He cannot communicate, he cannot hold his head up, he can't even see well enough or at all, to look or point at something. You'll hear most moms say they wish that newborn stage could last forever and while that time is amazing and special and the snugs are legit and you're just in this euphoria...I can honestly say that watching your child grow and thrive is something that I would never take for granted. I want so much for him to learn, to succeed, to learn, to thrive. My hopes is that we can get to a point where he can at least communicate on some level. Have even the slightest bit of independence. 

It has been a real struggle. Not knowing what's to come. Not knowing if he'll ever be able to move on his own, feed himself, communicate to others. 

It's been a long and rough journey trying to help him and take care of him. And we’re just continuing on. Doing everything we can. No suggestion goes without at least a glance. The amount of toys and gadgets I’ve bought just to try is unreal, but I have to try. And I won't be stopping anytime soon. 

So for the last year, we’ve been working with a doctor who has just taken us under her wing and is doing everything in her power to help Henry. And help us to help Henry. She has had her own struggles with one of her son's and is determined to help Henry have a better quality of life. Whatever that looks like. 

She has introduced us to stem cell therapy and Henry has already had 3 injections. It does take time to see results, so we are still in the waiting limbo of hoping and praying for something, but we are here for it and really praying that this is what will trulyhelp Henry.                                      
Henry's had a couple huge strides for him, small for most, but we celebrate those wins! His therapists are so invested and love him so much! They always share videos or pictures of his progress, if I'm not there to see it and recently Henry has been holding a spoon by himself and even keeping it at his mouth! 

He's beginning to chew on Cheetos and even started sucking yogurt out of a pouch! Things you never thought you'd be so excited about are big time celebrated in this house! He's been playing in the tub with his brother and sister, chilling in his ball pit and giggling at tickles. This kid is incredibly difficult, but these moments make it all worth it!!